People with Parkinson’s may receive palliative care at any stage of the disease, from early diagnosis to end-of-life stages. This kind of care can help people manage symptoms and live with Parkinson’s disease.

Many people associate palliative care with end-of-life care, but palliative care isn’t just for people in the final stages of a disease. Palliative care is for anyone with a complex condition or illness, such as Parkinson’s, including people who’ve just been diagnosed.

Palliative care can help newly diagnosed people learn about Parkinson’s, manage their symptoms, plan for the future, and more.

As Parkinson’s progresses, that same palliative care team can minimize symptoms, adjust medications, recommend therapies and assistive devices, and provide mental healthcare. It’s an additional support system for people managing conditions like Parkinson’s.

Palliative care is a specialized type of support program for people with complex progressive and chronic conditions such as Parkinson’s disease.

Palliative care programs are provided by a team of doctors, nurses, physical therapists, and other medical professionals. The team focuses on goals such as:

  • minimizing pain
  • reducing symptoms
  • improving quality of life
  • helping to manage stress
  • providing emotional and mental health support
  • educating patients and their families about conditions
  • setting future goals
  • monitoring patients through the years as conditions progress

Palliative care provides additional support for people with Parkinson’s disease. It doesn’t replace your regular doctors and therapists, and you won’t need to stop any treatments or therapies you currently receive.

Palliative care programs can stay with you through the years. Doctors from your palliative care team can communicate with your primary care doctor and other members of your broader medical team if needed.

Palliative care vs. hospice care: What’s the difference?

Often, people confuse palliative care and hospice care. However, these two services are very different.

Hospice care is end-of-life care that provides comforting and pain-relieving care for people with terminal diagnoses. Hospice patients generally have about 6 months left to live and have elected to stop many of their treatments. People receiving hospice care receive medication to help with symptoms such as pain but no longer take medication that attempts to cure their conditions.

Conversely, palliative care can be started at any time and can be done alongside treatments. People can begin palliative care right after receiving a diagnosis and can work with a palliative care team while they are receiving curative treatment.

Palliative care can have many benefits for people with Parkinson’s. Someone’s specific palliative care depends on their individual needs.

The exact benefits will depend on a person’s specific symptoms and the level of care needed.

Common benefits include having:

  • help setting goals for your care and treatment plan far in advance
  • the support you need to live your life in the fullest way possible
  • a social worker on your team who can help you manage any life changes
  • access to mental healthcare if you need to talk with someone
  • dietary experts and nutrition resources are accessible if your eating habits and nutritional needs change as Parkinson’s progresses
  • aides who can assist with physical or daily living tasks if your ability to take these on independently declines
  • healthcare professionals who can act as a channel of support between you and doctors and medical facilities
  • nurses and doctors who can monitor you for changes in your medication effectiveness
  • nurses and doctors who can monitor you for symptoms so that they can be addressed quickly
  • railings and other supports set up in your home to help minimize your risk of falling
  • speech therapists on hand to reduce any communication difficulties

You can start palliative care for Parkinson’s at any time. Palliative care can help anyone who has a complex and progressive condition like Parkinson’s.

Although many people wait until their condition has progressed or until they are in the later stages of Parkinson’s to seek out an option such as palliative care, you might get more benefit from starting this care earlier.

That way, you’ll have a supportive team with you over the years that can help you manage your diagnosis.

There are multiple types of professionals and agencies that offer palliative care programs, depending on where you live.

Often, agencies that offer home healthcare, hospice care, or senior living programs also offer palliative care. Your doctor might be able to recommend a palliative care professional in your area.

You can also use this palliative care directory to find one in your area.

Palliative care is covered by Medicare, Medicaid, and most other insurance providers.

Many providers don’t list palliative care as a separate covered service, but do cover the services of all the medical professionals who will be part of your palliative care team.

Typically, you’ll be responsible for your standard visit copayment or coinsurance for seeing these providers. For example, Medicare Part B covers 80% of the Medicare-approved cost of most palliative care visits.

If you’re not sure about your coverage, the palliative care agency you select will likely be able to assist you. Most agencies have social workers and other professionals on staff who can help you navigate your insurance and the cost of care.

Palliative care can provide many benefits for people with Parkinson’s disease. Palliative care is not hospice care. It is not only for people in the end stages of a disease or for people at the end of their lives.

Palliative care is for anyone with a complex condition, such as Parkinson’s. It works as an addition to the care you’re already getting from your regular doctors, therapist, and other healthcare professionals. You don’t have to stop receiving any of the care you’re receiving now to receive the benefits of palliative care.

Palliative care can provide additional support and resources to reduce symptoms and improve quality of life. It can be started at any time and is generally covered by insurance.