Even if you understand what primary progressive multiple sclerosis (PPMS) is and its effects on your body, there are likely times when you feel alone, isolated, and maybe somewhat desperate.
While having this condition is challenging to say the least, these feelings are natural.
From treatment modifications to lifestyle adaptations, your life will be full of adjustments. But that doesn’t mean you have to adjust who you are as an individual.
Still, finding out how others just like you are coping and managing the condition can help you feel more supported in your PPMS journey.
Read these quotes from stories from our Bezzy Multiple Sclerosis community and see what you can do to cope with PPMS.
“I’ve learned the art of adaptation, embracing each phase as I navigate the complexities of MS.”
-Monica Lynne, living with MS
“We are MS warriors, after all. New symptoms may creep up on us, and we may recoil momentarily. But our resolve does not budge.”
-Karen Bender, living with MS
“We all experience heartbreaking tragedies in our lives. My own body suffers daily, and my life has been drastically altered because of primary progressive multiple sclerosis (PPMS). But for me, a little perspective helps to remember that it’s not the worst thing that could happen.”-Lisa Kemppainen, living with MS
“When I received my diagnosis, I found online support groups and followed organizations like the National MS Society and Bezzy MS, where I could read other people’s stories and know that I’m not alone.”
-Lindsay Karp, living with MS
“But in the end, MS warriors are stronger because of what we endure every day. We have proven that we can improvise, we can adjust, and most importantly, we can laugh.”
-Ashley Harris
“Although you know this disease is going to alter the rest of your life, it’s not a death sentence. You can survive. We can carry on. It takes a lot of adjustment, but it can be done, and you are not alone.”
-Michael D, living with MS